Mom's Newest report...

Hello Everyone, thank you for all the encouraging emails and text messages. It really helps to know that so many people are praying and truly care. Let me update you on Gaby, so that you know where we are at this point. We got back preliminary results that Gaby's cancer is a high risk. This puts her at a Stage 3, high risk, nueroblastom. The hematologist/oncologist has been great so far. Dr. Cauff has been very proactive and helpful till this point. I did express to him that I wanted a second opinion; I am looking at Memorial Sloan Kettering or St. Jude. He has sent emails to nueroblastoma experts in his field and is helping me get the second opinions. I am exploring all options to see what will be best for Gaby and increase her chance of survival however we have to decide this week coming up what we are finally going to do; time is crucial. I ask God to help me make the right decision for her. Most likely by the beginning of next week, we will find out about the MIBG study, it will tell us if she stays at Stage 3 or moves to Stage 4.There is also one more genetic study that is pending which we will know very soon. The waiting game is no fun.She has had some difficulty after surgery and some set backs. I'll be honest with all of you, it hasn't been an easy week. There are times that I am as strong as can be and other times that I feel so down. But I guess this is normal considering what Gaby is going through. As of now, her lower intestines are working okay but we are still waiting for the upper intestines to work. This happens sometimes after surgery however I am anxious for her to recover and start treatment ASAP. Gaby has also had some issues with the line that was placed in her neck but I will not get into it since its coming off tomorrow, thank God, it has been torture for her. Her hemoglobin is dropping and there is a chance that she'll need another transfusion tomorrow if it gets lower. Lets hope it doesn'tSince Gaby is not feeling like Gaby, I've asked for only immediate family to come. As her mother, I feel that I have to give her 100% of my time. If I have to deal with visitors, I can't really dedicate 100% to her and she is just not feeling up for it, I know it. Not only that, her immune system is down and the least amount of people that she is exposed to the better. Please don't get me wrong and I hope you all understand, I just think its best for her.I can't thank you all enough for all the prayers. Please do not be discouraged if I can't answer your phone call, text message, or email. Its really hard to keep up with all of them therefore here is the latest update on Gaby.
God Bless you all,Mildred